Thursday, May 31, 2007

Kids.

Me: Hurry up kiddies!
Lorelai: 'We arnt piggies!'
Liam: 'She said kiddies!!'
Lorelai: 'Oh she said kiddies?!
Liam : 'NO!! i said she said piggies!?'
Me: ???
Jaiden: 'whats your name ?' (looking at me)
Me: ~sigh~ 'its mummy.'
Jaiden: 'Oh, ... I love you mummy.'

....................do i laugh or cry?

Im tired today, i dont know why - i got a good nights sleep, actually a bit too good, i only woke up 10min before Lorelai arrived!
I am both looking forward to and dreading next friday when Jaiden has his Echo.
Part of me is just wanting to get it overwith and move on with life -the other part just wants to put it off so i never have to find out what happens next.
Im hoping we will go in there and the dr will say - oh wait my mistake, he hasnt got a hole at all its just an innocent murmour and carry on as normal.
I have a feeling that wont be the case though. He has been alot more tired recently spending much less time running around like mad and just wandering off and lying on the couch. I hate looking at him resting because he seems to breath so hard, like he was just in a race. Swelling is bad too - the "cheese" aka spongebob watch is fluctuating daily between too loose on the smallest setting and too tight on a few settings up.
I was looking at old photos a minute ago and i really wish we hadnt cut his hair. sigh

Saturday, May 26, 2007

SUPRISE!!

Holger and i were out in the garden when the phone rang, "Hi its Nadja"
Now Nadja and Jamie been overseas for 2 years so we love getting phone calls from her and getting to hear about her latest adventures!
So imagine our suprise when we asked her location and she replied "mum and dads, want to come up?"
THEY WERE BACK!!!!
Its been wonderful catching up with them, they have had so many amazing adventures and i cant wait to hear more about it! The kids are thrilled to bits to have "Aunty Nadja" back too. Lachie getting to meet her for the first time. While i dont think Jaiden remembers her - she has certainly given him a good impression - he has been asking all morning "go see nardeea????"
Welcome back guys! We missed you!
Its funny how things throw you into perspective - i must say to read Nancy's blog today "Earth Angel" post , was quite bizarre as i had a very similar encounter the other day at the local shop...A women campaigning for the local government was handing out fliers and my friend took one and noticed a policy on it for an education supplement payment for children with below average test scores, to help them get extra education - My friend commented that it would be great for Jaiden, so i commented back to her that i wonder if it still counts when your child is disabled? - The women campaigning overheard approached me and asked if i had a child with a disability, she looked a little bit excited by this prospect and i was a bit taken aback. When i replied 'Yes' She said she also had a disabled child, she looked so relieved/happy to talk with me and she was easy to speak to. She asked what my child had, i replied he is suspected to have Williams Syndrome, but we are awaiting genetic testing to confirm this - i then told her a bit about Williams and she informed me that her daughter had Retts and told me about it. She also commented on many of the wonderful qualitys her daughter has and how she wouldnt trade her for anything - there was so much love and so much sorrow in her eyes at the same time.I have realised , after this conversation just how lucky i am.If you are to have a child with a disability and you could choose which one i would pick WS. My son is such a Happy Person, everyone adores him - yes he has his share of problems, but god im lucky.