My prayers and heart go out to Whitney Troy and Brandon who have just made the hardest decision anyone could ever make.
We love you guys. Anything you need we are here for you.
xxoo
Tuesday, February 26, 2008
Thursday, February 21, 2008
prayers
I dont understand what has happened. Suddenly there are so many people i care about becoming ill, i feel like i am watching the world fall apart and there is nothing i can do about it. I just want to scream STOP! and let life go on as normal.
My prayer list is so long and i just wish there was more i could do :(
My own life has suddenly become rather smooth, i dont understand why i am so lucky and the people i care so much about are not.
So please send special prayers with me to Abi (for upcoming surgery) , Ava, Ava Jewel, Blake and Michaela and of course their wonderful families who's courage empowers us all.
xxoo
My prayer list is so long and i just wish there was more i could do :(
My own life has suddenly become rather smooth, i dont understand why i am so lucky and the people i care so much about are not.
So please send special prayers with me to Abi (for upcoming surgery) , Ava, Ava Jewel, Blake and Michaela and of course their wonderful families who's courage empowers us all.
xxoo
Sunday, February 17, 2008
Luke
My work place is like a child magnet - we have litrally hundreds of children visit over the weekend and many special needs kids too - i tend to spend a bit of extra time with these families, i let them cuddle the puppies, touch a lizard etc.
On saturday afternoon just before we closed, a man and his son came up to the counter to buy some stuff, the dark haired, stocky, short statured but not really plump boy with a big smile grinned up at me and said "Hello!, can i give big Big BIG cuddles to the puppy??" I laughed and immediatly thought that was something Jaiden would say so of course my soft heart obliged and we went and gave a hug to the little fluffball maltese puppy. The little boy started chatting away and i was rather amused as the little boy continued to speak about anything, it became obvious that this little fella was special needs, he started telling me stories and using hand gestures, doing that little funny hands-curled-backwards-on-hips-when-proud thing Jai does. The more he spoke and moved the more it was like talking to Jai. His father briefly apologised for the chatter and i said, dont worry at all, he is so similar to my son, i feel like im talking to him!
the little boy ran up the back to show me the birds and i took note of the way his little head moved side to side and his knees bowed slightly as he ran - Just like Jaiden.
They stayed for about 15 min and we did a little guided tour of the shop and patted the animals, he told me he goes to BIG school now, like his cousin and that he can go really really REALLY fast in the car to school and so fast they FLY there, like birds. He likes birds, but they are a bit loud, he suprised me by spontaniously and correctly naming every bird we had in the room but one which i told him is a 'superb parrot' so now he knows the "SUPER PARROT!" as well.
His dad said he has some topics he just knows backwards, and if i ask any questions id better have a lot of time on my hands!
I told him he was clever knowing all those bird names and he said it was cause he is 5 now and not 4 now, but 5 now and he will be 6 in a minute! I asked him his name and he said "I Luke!, and im 5 now, so i can fly like the 'super parrot'" Lukes dad seemed interested in my few little comparison with Jai comments, and looked as though he wanted to ask questions, but didnt. And nor did I.
They left soon after but promised to come back and visit.
'Luke' definatly doesnt have Williams Syndrome, his face is wrong for that - he has a big mouth and slightly puffy eyes but nothing else, his facial features mostly look like his dads. I do cling to things in my little diagnosis search, but meeting this boy who was basically Jaiden with a different looking head, i think if i can find out what he has i will find out what Jaiden has.
I started work at midday on Sunday, and was informed that in the morning Luke (who was instantly recongnised by a collegue from the previous day) had come back in with his mother and bought some fish and would be back next week for more... Now i just have to figure out if i have the guts to say anything, and if i do what can i say?
On saturday afternoon just before we closed, a man and his son came up to the counter to buy some stuff, the dark haired, stocky, short statured but not really plump boy with a big smile grinned up at me and said "Hello!, can i give big Big BIG cuddles to the puppy??" I laughed and immediatly thought that was something Jaiden would say so of course my soft heart obliged and we went and gave a hug to the little fluffball maltese puppy. The little boy started chatting away and i was rather amused as the little boy continued to speak about anything, it became obvious that this little fella was special needs, he started telling me stories and using hand gestures, doing that little funny hands-curled-backwards-on-hips-when-proud thing Jai does. The more he spoke and moved the more it was like talking to Jai. His father briefly apologised for the chatter and i said, dont worry at all, he is so similar to my son, i feel like im talking to him!
the little boy ran up the back to show me the birds and i took note of the way his little head moved side to side and his knees bowed slightly as he ran - Just like Jaiden.
They stayed for about 15 min and we did a little guided tour of the shop and patted the animals, he told me he goes to BIG school now, like his cousin and that he can go really really REALLY fast in the car to school and so fast they FLY there, like birds. He likes birds, but they are a bit loud, he suprised me by spontaniously and correctly naming every bird we had in the room but one which i told him is a 'superb parrot' so now he knows the "SUPER PARROT!" as well.
His dad said he has some topics he just knows backwards, and if i ask any questions id better have a lot of time on my hands!
I told him he was clever knowing all those bird names and he said it was cause he is 5 now and not 4 now, but 5 now and he will be 6 in a minute! I asked him his name and he said "I Luke!, and im 5 now, so i can fly like the 'super parrot'" Lukes dad seemed interested in my few little comparison with Jai comments, and looked as though he wanted to ask questions, but didnt. And nor did I.
They left soon after but promised to come back and visit.
'Luke' definatly doesnt have Williams Syndrome, his face is wrong for that - he has a big mouth and slightly puffy eyes but nothing else, his facial features mostly look like his dads. I do cling to things in my little diagnosis search, but meeting this boy who was basically Jaiden with a different looking head, i think if i can find out what he has i will find out what Jaiden has.
I started work at midday on Sunday, and was informed that in the morning Luke (who was instantly recongnised by a collegue from the previous day) had come back in with his mother and bought some fish and would be back next week for more... Now i just have to figure out if i have the guts to say anything, and if i do what can i say?
Wednesday, February 13, 2008
First day of pre-school
I am ever amused by Jaiden's tales, the kid might not be the brightest spark but he sure knows how to spin a yarn! I cant believe that not much over a year ago he could only say a few words.
Today was his first day of big boy pre-school, he proudly walked all the way to school with his brand new red dinosaur schoolbag on his back and a big grin on his face. I think i was far more daunted than he was by all the unfamilar people crowding the small pre-school complex. There were small children screaming after there parents and mothers planning their child free days together. Everyone seemed so big. We were welcomed into the classroom and were seated in a carpeted space with several different puzzles to choose from to make with our children before saying goodbye, i located a Jaiden-suitable puzzle and retreated to a back corner of the room where just one lady was building with her son. The lady introduced her son as Nate and i suddenly remembered one of Jaidens EIU teachers had said to look out for a Nate that would be in his class, i asked her if she knew Cathy and she did of course, Canberra is a very small place sometimes. She has 3 sons aswell and as fate would have it her middle son is in Liams Kindy class! Nate and Jai played next to each other in the "kitchen" area for a bit having given up on the puzzles and then it was time to say goodbye. I started to leave with a slightly heavy heart and looked up to see a baby with a dummy smiling at me. Suddenly I realised I had forgotton about poor Lachie strapped into his stroller, just inside the classroom door quietly wondering where on earth mummy had gone, i made a quick recovery and thanks to the abundance of people, nobody seemed to notice my momentary memory lapse - Lachie grinned at me "Lets go, mummy!" and with my heart beating rather fast we made a quick exit.
Lachie went off to Oma's house for the morning and i met up with my mother and went shopping, then it was time to pick up Jai. Mum stayed with Lachie to make sure i wouldnt repeat the mornings embarressing blunder and risk attracting the attention of child services!
I arrived at the pre-school classroom and peered through the window, Jai was sitting beautifully on the matt with the other kids listening to a story, they finished and began pileing out the door, except Jai who was still standing looking around the hallway somewhat confused. It turned out the teacher had told them to check their "craft pockets" for notes to take home, put their drink bottles in their bags and go see mum or dad. He got stuck at the craft pockets and wasnt sure which was his and what to do next. I helped him gather his belongings and we headed down the path towards home. I asked what he had done at school today and this was the response i got:
"We saw lions and a bear and big big biiiig bear! and there was a monster in the bin and miss clarke said no no no! and SMASHED the lid down like this ~makes smacking down motion with both hands~ and then we went on the aeroplane and went high high HIGH in the sky and flew down down down into the water with SPLASH (full hand gestures) and went in the swimming pool, and i like swimming pool."
Today was his first day of big boy pre-school, he proudly walked all the way to school with his brand new red dinosaur schoolbag on his back and a big grin on his face. I think i was far more daunted than he was by all the unfamilar people crowding the small pre-school complex. There were small children screaming after there parents and mothers planning their child free days together. Everyone seemed so big. We were welcomed into the classroom and were seated in a carpeted space with several different puzzles to choose from to make with our children before saying goodbye, i located a Jaiden-suitable puzzle and retreated to a back corner of the room where just one lady was building with her son. The lady introduced her son as Nate and i suddenly remembered one of Jaidens EIU teachers had said to look out for a Nate that would be in his class, i asked her if she knew Cathy and she did of course, Canberra is a very small place sometimes. She has 3 sons aswell and as fate would have it her middle son is in Liams Kindy class! Nate and Jai played next to each other in the "kitchen" area for a bit having given up on the puzzles and then it was time to say goodbye. I started to leave with a slightly heavy heart and looked up to see a baby with a dummy smiling at me. Suddenly I realised I had forgotton about poor Lachie strapped into his stroller, just inside the classroom door quietly wondering where on earth mummy had gone, i made a quick recovery and thanks to the abundance of people, nobody seemed to notice my momentary memory lapse - Lachie grinned at me "Lets go, mummy!" and with my heart beating rather fast we made a quick exit.
Lachie went off to Oma's house for the morning and i met up with my mother and went shopping, then it was time to pick up Jai. Mum stayed with Lachie to make sure i wouldnt repeat the mornings embarressing blunder and risk attracting the attention of child services!
I arrived at the pre-school classroom and peered through the window, Jai was sitting beautifully on the matt with the other kids listening to a story, they finished and began pileing out the door, except Jai who was still standing looking around the hallway somewhat confused. It turned out the teacher had told them to check their "craft pockets" for notes to take home, put their drink bottles in their bags and go see mum or dad. He got stuck at the craft pockets and wasnt sure which was his and what to do next. I helped him gather his belongings and we headed down the path towards home. I asked what he had done at school today and this was the response i got:
"We saw lions and a bear and big big biiiig bear! and there was a monster in the bin and miss clarke said no no no! and SMASHED the lid down like this ~makes smacking down motion with both hands~ and then we went on the aeroplane and went high high HIGH in the sky and flew down down down into the water with SPLASH (full hand gestures) and went in the swimming pool, and i like swimming pool."
Sunday, February 10, 2008
birds are noisy.
I surveyed the room, fish, puppies, birds, bunnies a kitten, various reptiles and more stock than I knew what to do with. Customers? No. Wait, as i looked up the back of a small boys golden curls could be seen bobbing in his fathers arms around the back of the shop, suddenly the child turned around and just as quickly back again. I was immediately struck with the very familiar features of Erick Quinn, and my heart momentarily skipped a beat His father headed over in my direction. The little boy glanced up at me again, his somewhat puffy rather starry eyes just peeking over the top of his fathers shoulder, the small upturned nose, and huge broad grin complete with little teeth followed in quick succession, if there had been any doubt in my mind that this child had Williams syndrome it was quickly quashed by the gruff little voice that erupted from his mouth with some concern, “Noisy” he stated and held his hands to his ears and looked towards the bird room at the other end of the store, “Yep”, I replied, “very noisy!”
I am pretty sure that his father thought I was completely mad as I could not take my eyes off his gorgeous son’s oh so familiar face while I was trying to stay focused and answer some serious questions he had about the care of the Eastern Long Necked Tortoise.
As he left I commented that his son had such beautiful starry eyes and it was nice to see such a happy little smile. I got a rather odd look and the man’s mouth opened as if to say something and then closed again as if he had thought better of it. I hope I didn’t come across as a weirdo stalker type.
After the customer had left a collegue walked up to me and said “That kid was a cutie, kind of looked like your middle one, don’t you reckon?” – If only she knew.
I am pretty sure that his father thought I was completely mad as I could not take my eyes off his gorgeous son’s oh so familiar face while I was trying to stay focused and answer some serious questions he had about the care of the Eastern Long Necked Tortoise.
As he left I commented that his son had such beautiful starry eyes and it was nice to see such a happy little smile. I got a rather odd look and the man’s mouth opened as if to say something and then closed again as if he had thought better of it. I hope I didn’t come across as a weirdo stalker type.
After the customer had left a collegue walked up to me and said “That kid was a cutie, kind of looked like your middle one, don’t you reckon?” – If only she knew.
Monday, February 4, 2008
Fly the nest..
I dont know where the last 5 1/2 years have gone, one minute im a scared teenager holding a baby thinking "what the hell do i do with it?" the next im kissing my first born on the head and wishing him well on his first day of Kindagarten.
Liam shook me from my slumber bright and early, 5:30am to be exact, already dressed in his bottle green shorts, white shirt and bottle green hat, wearing his brand new spiderman backpack complete with bright blue drink bottle. "Can we go yet mum??"
Huh?? was my sleepy response before realising that it was the first day of the rest of Liams schooling life - 5 days a week for at least the next 13years. Wow.
I convinced Liam to remove his bag and hat and go and watch some cartoons on TV while Holger and I got up and ready. The next 3 hours passed slowly for Liam and quickly for me as i made triple sure he had all of the supplies on the list from his school, made lunch and recess... and afternoon tea (how many breaks do they get!?)
Lorelai and Therese arrived and Therese stayed with the kids so that I could go alone with Li. We drove the 200metres to the school as it was raining very heavily and thanks to a certain middle child (who's name i wont mention)my Umbrella has been declared no longer useable. Only Kindy kids were starting so the school was full of very small bewildered and excited children in oversized uniforms and slightly sad looking parents, i followed some people to the Library where we took our seats next to a little boy from Li's preschool class. We listened to the principle explain how he and his staff would make a better world with his students at the forefront and were then introduced to the staff. The children were called to their teachers for the year and we all followed down to their new classroom.
The kids were shown where to hang their bags and where to place their drinks and lunchboxes and we came in to play a quick game with them before we were ushered out the door.
With a quick cuddle and a "bye mum" he was officially a big boy. I didnt cry.
Much.
Liam shook me from my slumber bright and early, 5:30am to be exact, already dressed in his bottle green shorts, white shirt and bottle green hat, wearing his brand new spiderman backpack complete with bright blue drink bottle. "Can we go yet mum??"
Huh?? was my sleepy response before realising that it was the first day of the rest of Liams schooling life - 5 days a week for at least the next 13years. Wow.
I convinced Liam to remove his bag and hat and go and watch some cartoons on TV while Holger and I got up and ready. The next 3 hours passed slowly for Liam and quickly for me as i made triple sure he had all of the supplies on the list from his school, made lunch and recess... and afternoon tea (how many breaks do they get!?)
Lorelai and Therese arrived and Therese stayed with the kids so that I could go alone with Li. We drove the 200metres to the school as it was raining very heavily and thanks to a certain middle child (who's name i wont mention)my Umbrella has been declared no longer useable. Only Kindy kids were starting so the school was full of very small bewildered and excited children in oversized uniforms and slightly sad looking parents, i followed some people to the Library where we took our seats next to a little boy from Li's preschool class. We listened to the principle explain how he and his staff would make a better world with his students at the forefront and were then introduced to the staff. The children were called to their teachers for the year and we all followed down to their new classroom.
The kids were shown where to hang their bags and where to place their drinks and lunchboxes and we came in to play a quick game with them before we were ushered out the door.
With a quick cuddle and a "bye mum" he was officially a big boy. I didnt cry.
Much.
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